Lets get this started!

Well I guess I should introduce myself. My name is Rachel. I am a 28 year old married, mother of a 2 year old. I wanted to start this blog basically as an outlet to get things of my mind and to get whoever updated on me and whats going on.
I have recently been diagnosed with a rare form of Muscular dystrophy called Acid Maltese Defieancy, or POMPEE diease. You can read more about it here http://www.mda.org/disease/amd.html
I will blog about Dr.s appointments and recent updates pertaining to this disease. I will also blog about life rasing a child with a disability and the everyday struggles that come with it.